It has been a little more than 2 months since Elliott's craniotomy and about 3 and a half months since his initial diagnosis. To be perfectly honest, when I think back on the last 3 and half months, it's almost like it didn't really happen...like it was all just a very bad dream with a (hopefully) happy ending. I still have trouble wrapping my mind around the fact that this truly happened to our family and that we survived it and are thriving.
It's hard to believe that he went from this on April 20 (this was right before his stitches were removed)
to this on May 27...it's unbelievable really.
We found out at his 6 week post surgery appt with the neurosurgeon that there is a 15% chance that his tumor (benign) will grow back. That percentage actually seems quite high to me, so I am trying to focus on the 85% chance that it will not grow back. If it grows back, he may have to have radiation or a more radical tumor removal surgery. I'm not sure how you can get much more radical than the craniotomy that he already had, and the thought of that is both terrifying and overwhelming. He will have to have MRIs every year which is better (I guess) than the every 6 months that we were expecting. I am sure that the last couple of months before the next MRI are going to be very difficult as we wait to find out if the tumor is growing back.
The girls have handled the situation very well, but they (especially O) have had a very difficult time separating from me since we returned from our week away during the surgery. It was very difficult to drop her off at school for the last few weeks, and she recently freaked out when I tried to leave her backstage at her dance recital. This surprised me a lot since it was her 3rd recital, and she has been in 3 ballets, and she has never, ever had a problem with me leaving her before. We have had Vacation Bible School at our church this week, and I have been a teacher for the kindergarten class. When my mom asked O(5) what the best part of Bible School was, she said "the best part is that mama doesn't drop me off. She stays and is a teacher and doesn't leave me." I really hope that we haven't damaged her for life by being away from her during Elliott's surgery. Hopefully, she just needs time and lots of mama and daddy time before being comfortable with us leaving her again.
Thank you again to everyone for your thoughts, prayers, and kind words that have supported us through all of this.